Reviews

Boston Globe
Within a year after graduating from Harvard Business School, John Crowley heard the worst news of his life. His 15-month-old daughter, Megan, was diagnosed with Pompe disease, a rare and fatal genetic disorder that attacks the muscles. Megan was not expected to live beyond age 5. Only a few months later, Crowley received a second blow. His infant son, Patrick, was diagnosed with the same illness. There was no known cure. Since the disease strikes fewer than 10,000 people annually , drug companies lack a financial incentive to develop a treatment. Refusing to accept this dire situation, Crowley set about to change it. Read more...

The Library Association
At 15 months old, Megan Crowley was diagnosed with Pompe disease, a rare genetic disorder that was likely to reduce her life span to five years at most. Her five-month-old brother, Patrick, shared the same disease and its crippling progression. Their father, John Crowley, a freshly minted Harvard MBA graduate, was determined to use his brains and connections to find a cure. Read more...

The New York Post
CAN you imagine what it would feel like to be CEO of a fledgling drug company whose goal is to produce a drug that could save your children's lives? Or how it would feel to be scrutinized by corporate officials because these same children supposedly represent a conflict of interest? Read more...